Miscommunication
My voice problem is dysarthria, a common symptom of ALS. At first, it made for a few funny moments. I’d speak a command to my Echo Show and laugh at the mismatch of its reply. That novelty quickly wore off.
Frustrated with the one-sided game and the device’s penchant to ignore me altogether, I was ready to pitch it into the garbage bin. But an invitation to join Project Euphonia, sponsored by Google to help teach its software how to better understand me, saved the day.
Over the past year, I logged into my weekly sessions, read aloud a random series of sentences shown on the screen, and felt satisfied that I was part of the solution. As a side benefit, I believe that reading out loud is helping me practice good speech habits.
An invitation
Back to last week, I opened an email from a reporter at The Wall Street Journal asking to interview me for a story about how technology companies are working to train their voice assistants to better understand people with dysarthria and other nonstandard speech.
I said yes, of course, and we quickly set up a date and time for a call.
That’s when I felt the anxiety and fear of failing welling up. Would she understand me? Or would I come across garbled and sounding like the mismatch of words my Echo Show spoke?
From past experience, I’ve learned that my success at communication goes way up when I can add facial expression and body language into the conversation. Too often on a phone call, I hear the other person answer with a generic “uh-huh,” and I know they really didn’t understand me at all.
So, I suggested we do the interview online, with cameras on. She agreed.
Talking together
On the day of the interview, I sat down, did a few body stretches and some deep breathing exercises, and crossed my fingers.
Suddenly, a friendly face was smiling back at me coming all the way from the U.K. We said hello, and I don’t remember much else. The 30 minutes flew by as the front of my brain babbled on. Occasionally, the back of my brain checked in with commands to breathe more slowly, enunciate each word, and use a little less body language, please.
We discussed many topics, especially focusing on how people with speech problems may be the group that benefits the most from voice recognition technology.
Devices and technology in the home that can control the lights, door locks, curtains, room temperature, and even Roombas have become essential for many living with chronic disease and related physical disabilities.
Having devices that understand our voice commands should be a given. Too many of us use the demoralizing workaround of programming the text-to-speech app on one device to “speak” the command to another device.
You can read the full article and my interview here.
Technology will always evolve, and if our future includes voice-activated devices, we want the technology companies to include us. Because we all want to live well while we live with ALS.
